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There is currently no cure for Charcot-Marie-Tooth (CMT), a progressive neuromuscular disorder that affects an estimated 2.6 million people, causing them to live with limited ability and mobility, as well as deformities and frequent pain. But now, more than at any previous time in the history of CMT research, hoped-for treatments and cures have an excellent chance of becoming a reality. With your help, the Strategy to Accelerate Research (STAR) will build upon recent breakthroughs in …
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Tags: 6 Million, Charcot Marie Tooth, Charcot Marie Tooth Disease, CharcotMarieTooth, Cmt, Deformities, Disease, Frequent Pain, Progressive Neuromuscular Disorder, related, Related Research, research, STAR
don’t worry guys, I have CMT and am confident i’ll get accepted for a neuroscience/biomedical degree at manchester
i’ll soon cure us all
hola soy de argentina tambien tengo esta enfermedad me es medio dificil de tratarla me gsutaria charlar con alguien ke pase lo mismo ke yo
let them laught, the true is the ppl who is laughing got more problems with theirself then us with cmt, really.
i got this myself, no sorry for us, but sorry for theese ppl whos laughintg of us,
mi have this too born with it, its hard sometimes, and my children will might get it too, but so what? it more worse diseases then thos, somtimes its very hard, but iam fine, no sorry for me, iam born, i got a life, and loved, i have the life i ever wanted, and who laught about this..iam sure they got more problems with them selv then us with cmt really=) the best of all, is i know iam not the only one with cmt, its more ppl with cmt, and their living=)
im sorry for these people. i have it to, but no one is going to care. people will just laugh at us. they always will.
you could AIM me if you want
aim: b1essthefall
My boyfriend has this, especially in his legs and feet and has fusions in his toes.
yea i have a lot in my feet too, and a little in my hands. it’d be great to meet someone in real life who has to deal with it too
no prob m8
it is still being researched, in the future it will probably be used as therapy for many muscular and neural diseases, and becoming affordable.
o thats too bad, thx anyway for the info
myostatin is a gene that induces muscles dystrophy. by blocking this gene, dystrophy can be halted.
Labs sell this stuff, but it costs $4500 for 1 mg
(do a google search, you’ll get many results)
what is that and is it a health risk to take it?
Research tells myostatin inhibitors can reduce the dystrophy effects.
i have this shit
Hey yeah I have it too. Let’s hope this STAR programme finds a cure huh? I have a feeling it won’t come about in our lives though – maybe in our children’s or children’s children?
Vamos a ver.
=/ ive gt this too, its hard. effects my feet alot more than my hands too. i wanna meet ppl with it